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Video
ELSIcon2022 Paper: The Genome and the Biome: Cystic Fibrosis @ Six Feet Apart
ELSIcon2022 • Paper • May 31, 2022 Rebecca Mueller Though cystic fibrosis is often referenced as a mendelian genetic disease, it also provides insights about the human microbiome and the…- Live
- Paper
- Population screening and public health genomics
- identity
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News
ELSI Research Methods Spotlight: Social Network Analysis
Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI), develops and applies social… -
Publication
Genetic researchers' use of and interest in research with diverse ancestral groups
JAMA Network Open -
Grant Abstract
A Framework for Disability Perspectives on HGP
The Human Genome Project (HGP) is a source of hope and a cause for concern for people with disabilities and their families. Few researchers have solicited the input of the disability community about…- Attitude
- behavioral /social science research tag
- Clinical Research
- Data Collection
- developmental disease /disorder
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Grant Abstract
Behavioral Epigenetics in Children: Exploring the Social and Ethical Implications of Translation
Epigenetics has become an area of growing interest for scientists, physicians, policymakers, and the public. Referring to molecular processes that alter gene expression without changing DNA sequence…- Adopted
- Anxiety
- Area
- Attention
- Award
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Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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Grant Abstract
Ethics of Identifying Race in the New Genetics
This ethnographic study examines the social and ethical implications of the use of categories of race and ethnicity in human genome research. The specific goals of the proposed research are: 1) to…- biotechnology
- culture
- Ethics
- Genetic Polymorphism
- Genetic Screening
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Grant Abstract
African American Genealogy, Old Records/New Genetics
The University of Minnesota's Center for Bioethics will hold the first national meeting to bring together the diverse groups working to reconstruct African American genealogies and ancestries…- African
- African American
- behavioral /social science research tag
- culture
- Ethnic group
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Publication
Exploring pathways to trust: A tribal perspective on data sharing
Genetics in medicine: official journal of the American College of Medical Genetics