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NIH Jul 12, 2021 | K01
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Institution: Baylor College of Medicine
FOA Number: PA-19-126
Abstract
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored strategies are needed to ethically engage various individuals living in the rural South to promote equitable access to genomic discovery and translation. Thus, the proposed study leverages a multi-disciplinary team and stakeholder-engaged approach to ultimately identify best practices for community translation of genomic discoveries.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
K01Project Number:
K01HG011495Start Date:
Jul 12, 2021End Date:
Apr 30, 2024PROJECT TERMS:
Accountability, Alabama, Attention, behavioral sciences, biobank, Biological Sciences, Caring, cohort, Collaborations, Collection, Communities, County, Data, Deep South, ethical legal social implication, Ethics, evidence base, evidence based guidelines, experience, Focus Groups, Genetic, genome sciences, Genomics, Goals, Grant, Guidelines, Health, health disparity, health inequalities, Healthcare, Impairment, improved, Individual, individualized prevention, Informed Consent, Institutional Review Boards, Knowledge, marginalized population, Medical, member, Mentored Research Scientist Development Award, Mentors, Methods, Modeling, multidisciplinary, Participant, Phase, preference, Process, programs, Qualitative Research, Recommendation, recruit, Reproducibility, Research, Research Design, Research Institute, Research Personnel, Rural, Rural Community, rural counties, rural dwellers, Rural Population, rural underserved, Sample Size, Scientific Advances and Accomplishments, Social Sciences, Structure, Training, Translations, Underrepresented Populations, United States National Institutes of Health