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Publication
Looking to the future: Intellectual and developmental disabilities in the genetics era
Journal on Developmental Disabilities -
Publication
Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience
Am J Med Genet AClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006487, U01HG007292, U01HG009610, U01HG006485, U01HG009599, U01HG007301 -
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Job Posting
Associate Professor or Professor and Chair, Bioethics and Humanities
The University of Washington School of Medicine is seeking candidates for Chair of the Department of Bioethics and Humanities. The Chair will guide the mission and vision of the Department, which is…- Humanities
- Bioethics
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Job Posting
Associate Professor or Professor and Chair, Bioethics and Humanities
The University of Washington School of Medicine is seeking candidates for Chair of the Department of Bioethics and Humanities. The Chair will guide the mission and vision of the Department, which is…- Humanities
- Bioethics
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Video
ELSIcon2022 Paper: The Role of Patient Advocacy Groups Following Prenatal Diagnosis of a Genetic Condition
ELSIcon2022 • Paper • May 27, 2022 Kaitlynn Craig, Marsha Michie, Kirsten Riggan Little research has been conducted to support the a priori claim that prenatal genetic testing is justified by the…- Genetic Counseling
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Panel: Disability Justice and Precision Medicine Across the Lifespan: Towards a Future of Equity and Access
ELSIcon2022 • Panel • June 3, 2022 Kevin Mintz, David Wasserman, Leslie Francis, and Andrew Peterson This interdisciplinary panel will advance the dialogue between disability communities and those…- Live
- Panel
- Stigma and discrimination
- precision medicine
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News
NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens
On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Data and Biospecimen Sharing for Future…- Consent
- data and biospecimens consent
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Video
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Grant Abstract
Expanded Genetics Educational Program for Nursing Faculty
The two specific aims are unchanged for the expanded Genetics Educational Program for Nursing Faculty: a) to increase nursing faculty knowledge about genetics and its clinical application, and b) to…- Continuing Education
- curriculum
- Genetic Counseling
- Genetics
- Internet