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Publication
Sociocultural studies of families of children with intellectual disabilities
Ment Retard Dev Disabil Res Rev -
Publication
Privacy and ethical challenges of the Amelogenin sex test in forensic paternity/kinship analysis: Insights from a 13-year case history
Forensic Science International: Synergy -
Publication
Diachronic and synchronic variation in the performance of adaptive machine learning systems: The ethical challenges
Journal of the American Medical Informatics Association -
News
Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…- working group
- gene therapy
- Sickle Cell
- Stakeholder Engagement
- Spotlight
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News
Welcome to ELSIhub – Your Portal to ELSI Resources
We are delighted to announce the launch of ELSIhub! ELSIhub is your resource; now is the time to make it your own. Take a look around and bookmark the pages of most interest to you to personalize… -
Publication
COVID-19 one year into the pandemic: From genetics and genomics to therapy, vaccination, and policy
Human Genomics -
Publication
LGBTQ+ perspectives on conducting genomic research on sexual orientation and gender identity
Journal of Genetic CounselingMost LGBTQ+ participants in this study by Hammack-Aviran and colleagues expected research to confirm genetic contributions to sexual orientation and gender identity. However, interviewees were… -
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Video
ELSIcon2022 Panel: If we build it will they come? Navigating ELSI considerations for broad and responsible use of All of Us data by non-traditional researchers
ELSIcon2022 • Panel • June 3, 2022 Subhashini Chandrasekharan, Laura Beskow, Rosario Isasi, Stephen Sodeke The All of Us Research Program is in the process of collecting biospecimens and…- Live
- Panel
- Data and data stewardship
- precision medicine
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News
Just Funded
Our Just Funded feature is a listing of ELSI grants that were recently awarded by the National Human Genome Research Institute (NHGRI). If we missed your grant, please email us at info@…