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Grant Abstract
Integrating Nurse Champion Model for Group Reproductive Genetic Counseling for Sickle Cell Hemoglobinopathies into Primary Care: A Pilot Implementation Science Study
PROJECT NARRATIVE: Genetic counseling and health education are essential components of any early diagnosis program for sickle cell disease to ensure that risk results are effectively communicated by…- acceptability and feasibility
- Address
- Adopted
- Africa
- Africa South of the Sahara
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Grant Abstract
Criminal Justice Applications of Genetic Information
The long-term objective of this project is to develop a comprehensive analysis of the emergence of a new technological regime in criminal identification constructed around genetic information. The…- behavioral /social science research tag
- Behavioral Genetics
- biotechnology
- criminal behavior
- criminology
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Grant Abstract
Engaging African Communities for the HapMap Project
The Haplotype Map (HapMap) Project is an international collaborative project to produce a haplotype map of the human genome. The HapMap is expected to be a key resource for more efficient genome-wide…- African
- biotechnology
- Clinical Research
- community health services
- culture
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Grant Abstract
Mapping the Intersection: Self-identification and Genetic Ancestry
Assignment of individuals to categories of race, ethnicity and ancestry impacts health and public policy, yet the practice remains both scientifically and culturally controversial. The established…- African American
- Altruism
- Area
- Attitude
- base
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Grant Abstract
Ethics: A Bridge for Communities and Scientists
This proposal responds to the need for a sustained dialogue that promotes public understanding of the social, ethical and legal implications of the gene-environment interactions associated with…- asbestos
- behavioral /social science research tag
- Clinical Research
- education evaluation /planning
- Environmental Exposure
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Grant Abstract
Genetic Research and the Navajo Nation: Context of and Attitudes to the Moratorium
The Navajo Nation placed a moratorium on genetic research studies in 2002, yet the tribe has high rates of genetic diseases and disorders. Historical distrust, fears of exploitation, and limited…- Attitude
- biomedical scientist
- Communities
- Community Consents
- Disease
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Grant Abstract
Family Disclosure of Cancer Risk: An Ethnographic Study
There is almost no systematic, empirical research on the topic of how information about genetic risk information travels through families, what family and cultural characteristics might impede or…- behavioral /social science research tag
- breast neoplasms
- cancer risk
- culture
- data collection methodology /evaluation
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Grant Abstract
Minors At-Risk of Future Disease: Their Role in Research
This study will explore the process by which families at increased risk of adult-onset disease decide to involve their children in research on genetic susceptibility. Through interviews with parents…- adolescence (12-20)
- African American
- age difference
- breast neoplasms
- caucasian American
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Grant Abstract
Genetics and genomic research in Uganda: Towards context specific ethics guidelines
The overall goal of this proposed project is to systematically develop culturally appropriate model ethics guidelines for conducting genetics and genomics research (GGR) in Uganda. This goal will be…- Africa
- Africa South of the Sahara
- authority
- Awareness
- Bioethics
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Grant Abstract
Ethnicity, Citizenship, Family: Identity after the HGP
This project will bring together an interdisciplinary working group of scholars to explore these questions. During a three year period, it will meet to develop the language, criteria, and conceptual…- behavioral /social science research tag
- community
- culture
- Ethnic group
- family structure /dynamics