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Grant Abstract
Multidisciplinary Study of Race Appearance Ancestry Discrimination & Prejudice
The U.S. civil rights movement took place nearly a half century ago, yet significant racial disparities persist in health and justice. The elimination of these disparities is a goal shared by many,…- Address
- American
- Anthropology
- Appearance
- Appointment
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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Publication
Consanguinity and willingness to perform premarital genetic screening in Sudan
European Journal of Human Genetics -
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Publication
How US institutional review boards decide when researchers need to translate studies
J Med Ethics -
Publication
Medical mistrust influences black women's level of engagement in BRCA 1/2 genetic counseling and testing
J Natl Med Assoc -
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Video
ELSIcon2022 Paper: Sociodemographic diversity in clinical genomics research
ELSIcon2022 • Paper • May 31, 2022 Meghan Halley, Holly Tabor, Jennifer Young Background: Barriers to clinical genomics research participation are particularly critical for medically…- Live
- Paper
- Motivation to participate in research
- Patient-provider communication
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Video
ELSIcon2022 Paper: Genetic testing for hereditary cancer risk in India: A Case Study
ELSIcon2022 • Paper • May 31, 2022 Pooja Chitre, Janis Geary, Robert Cook Deegan India has a distinct history of dynamic migration, cultural and ethnic diversity, and widespread endogamy and…- Live
- Paper
- Data and data stewardship
- Genetic testing and screening