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Grant Abstract
iCONCUR: informed CONsent for Clinical data and biosample Use for Research
Being transparent about the use of data collected during clinical care is important to establish trust relationships between patients and researchers. We propose to develop a system to elicit patient…- Ambulatory Care Facilities
- Back
- base
- Caring
- Case Report Form
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Grant Abstract
Anticipating Enhancement: Ethical, Legal and Social Issues
This project will delineate the major ethical, legal and social issues accompanying the use of genomic information to enhance normal traits in individuals and families, and to identify the precedents…- behavioral /social science research tag
- Ethics
- Family Planning
- genetic manipulation
- Genome
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Grant Abstract
CSER RoRC Centralized Support Coordinating Center
The Clinical Sequencing Exploratory Research (CSER) and Return of Results Consortium (RoRC) programs are designed to investigate critical questions about the application of genomic sequencing to…- Area
- Bioethics
- Bioinformatics
- Biology
- Caring
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Grant Abstract
Sequencing mtDNA for Human Identification
The overall goal of this project is to assess the potential and limitations of the application of genomic sequencing to testing hypotheses of human identity and relationship. The model system for…- African American
- caucasian American
- extrachromosomal DNA
- Forensic Medicine
- Genetic Polymorphism
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Grant Abstract
Ensuring Patients' Informed Access to Noninvasive Prenatal Testing
PROJECT NARRATIVE The goal of this study is to study the effect of an evidence-based communication tool to support patients? decision-making about noninvasive prenatal genetic testing, by focusing on…- Aneuploidy
- Attitude
- bench to bedside
- Clinical
- clinical encounter
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Grant Abstract
Ensuring Patients' Informed Access to Noninvasive Prenatal Testing
PROJECT NARRATIVE The goal of this study is to study the effect of an evidence-based communication tool to support patients? decision-making about noninvasive prenatal genetic testing, by focusing on…- Aneuploidy
- Attitude
- bench to bedside
- Clinical
- clinical practice
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Grant Abstract
Emerging Issues In Criminal Forensic Genetics
Criminal DNA profiling could soon include phenotypic markers for attributes such as eye, skin, and hair color, gait, ancestry, and predisposition to behavioral traits such as smoking. This technology…- Alcoholism
- Appearance
- Attention
- Australia
- Behavioral
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Grant Abstract
Methods for Promoting Public Dialogue on the Use of Residual Newborn Screening
Newborn screening (NBS) is conducted on virtually every child born in the U.S. primarily through state-based public health programs. Following testing, there is blood leftover on each child that is…- Advisory Committees
- Advocate
- Affect
- Attitude
- Authorization documentation
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Grant Abstract
Parent Communication of BRCA1/2 Test Results to Children
One of the primary motivations for parents to participate in BRCAI/2 testing is to find out about their minor children's risk of developing cancer. However, parents often report feeling…- adolescence (12-20)
- behavior prediction
- behavioral /social science research tag
- behavioral medicine
- brca gene
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Grant Abstract
Ethical Legal and Social Dimensions of Human Microbiome Research
We propose an exploratory survey, parallel to the Human Microbiome Project (HMP), of the emergent ethical, legal, and social issues associated with human microbiome research. We will implement this…- Bacteria
- base
- Code
- Collection
- college