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Grant Abstract
Using Ethics and User-Centered Design to Create Templates for EHR-Mediated Return of Genetic Test Results
Patient engagement is critical for implementation of the genomic component of precision medicine--with care taken to include the perspectives and needs of patients. Yet many patients may experience…- Big Data Methods
- Caring
- Characteristics
- Clinic
- Clinical
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Grant Abstract
Dyadic Influence in Genomic Medicine: Couples' Beliefs, Disclosures, & WEllbeing
Genomic medicine has, on one hand, the power to predict potentially debilitating disease before its actual onset; on the other hand, it creates challenges for patients in determining how to assess…- Adult
- Affect
- alpha 1-Antitrypsin Deficiency
- base
- Behavior Therapy
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Grant Abstract
Ethical Legal and Social Implications Issues in Comparative Effectiveness Research
Two major forces in clinical medicine on the horizon are expected to change the paradigm of clinical care. One is personalized genomic medicine (PGM), which seeks to harness knowledge about the…- Alternative Therapies
- clinical care
- Clinical Medicine
- clinical practice
- Communities
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Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
The proposed project is a qualitative study of recruitment and retention into the All of Us Research Program (AoURP) at a federally qualified health center (FQHC). A key component of the NIH's…- African American
- All of Us Research Program
- Anxiety
- barrier to care
- care systems
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Grant Abstract
Advancing the Race Dialog: Genes, Forensics & Medicine
The overall goal of the proposed research is to contribute to improved communication about race and ethnicity among genetics researchers and, as a result, between these researchers, professionals who…- Clinical Research
- Forensic Medicine
- Genetic Polymorphism
- Genetics
- geographic site
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Grant Abstract
Rational Integration of clinical SEquencing (RISE)
The advent of clinical genome sequencing to identify patients at risk for serious diseases and to tailor treatments promises to greatly improve health outcomes and provide a foundation for the…- Adopted
- Adoption
- Adult
- Area
- base
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Grant Abstract
Adoption of Non-Invasive Prenatal Testing in Diverse Populations: A Multilevel Approach
Non-invasive prenatal testing (NIPT), a cell-free DNA screening test of fetal chromosomal abnormalities using maternal plasma, has been heralded as ?revolutionizing prenatal screening and diagnosis.…- Age-Years
- aged
- Ambulatory Care
- American
- Amniocentesis
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Grant Abstract
Addressing Ethical Challenges in Networked Biorepositories
Individual institutions across the country have worked to support research in a wide variety of areas, including precision medicine research, by developing large biorepositories comprised of…- American
- Area
- Authorization documentation
- biobank
- Biological
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Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
PROJECT NARRATIVE Human genome editing is a powerful tool for creating precise changes to the genome, the complete set of genetic material. However, human genome editing raises significant ethical,…- Address
- Adopted
- base
- Basic Science
- Belief
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Grant Abstract
The ELSI of Genetic Testing in the Workplace
The objective of this proposal is to begin to anticipate, analyze and address the ethical, legal and social implications of the use of new genetic information and technologies in a critical non-…- Clinical Research
- Ethics
- Focus Groups
- Genetic Screening
- health related legal