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Video
ELSIcon2022 Flash: Socioeconomic Status and Interest in Pursuing Genetic Testing for Hereditary Cancer in a US Based Population
ELSIcon2022 • Flash • June 3, 2022 Presented by: EJ Dusic Deborah J. Bowen, Robin Bennett, Tesia Theoryn, Kevin C. Cain, Elizabeth Swisher, Jeannine Brant, Brian Shirts, Catharine Wang…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Is Non-invasive Prenatal Testing Really Invasive? Examining Black Women’s Perceptions of Non-Invasive Prenatal Testing for Sickle Cell Disease
ELSIcon2022 • Paper • June 3, 2022 Presented by: Shameka Poetry Thomas Non-invasive prenatal testing (NIPT) has become standard prenatal care in the United States and is currently being…- Live
- Paper
- Uptake of genetic testing
- reproductive genetics
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Video
ELSIcon2022 Flash: INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Flash • May 27, 2022 Alyx Vogle, Betty Cohn, Rebecca Ferber, Kerry Ryan, Gregory Feero, Debra Mathews, Anya Prince, Kayte Spector-Bagdady, Kunai Sanghavi, Wendy Uhlmann, Charles Lee…- Pre-Recorded
- Flash
- Stigma and discrimination
- Genetic testing and screening
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Video
INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Pre-recorded Flash Alyx Vogle, CGC; Betty Cohn; Rebecca Ferber; Kerry Ryan; Gregory Feero; Debra Mathews; Anya Prince; Kayte Spector-Bagdady; Kunai Sanghavi; Wendy…- Genetic Testing
- Genetic Screening
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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
The All of Us Responsible Conduct of Research Training: Fostering Ethical and Socially Responsible Research with Data from All of Us Participants
ELSIcon2022 • Pre-recorded Panel Sonya Jooma - All of Us Research Program, National Institutes of Health, Deputy Policy Director Katherine Blizinsky, PhD - All of Us Research Program, National…- precision medicine
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Video
ELSIcon2022: Paper Session 6
ELSIcon2022 • Paper Session 6 • June 1, 2022 Includes discussion material from Caitlin McMahon, Nicole Foti, Janet Shim, and Mikaella Caruncho.- Live
- Paper
- precision medicine
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Video
Using an implementation research tool to guide the implementation of non-invasive prenatal screening
Tierry M. Laforce, MA, PhD Candidate - Université de Montréal ELSIconversations - April 16, 2021 cffDNA screening has changed the landscape of prenatal screening. In Canada, 2 provinces and 1…- Prenatal genetic screening
- precision medicine
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Video
ELSIcon2022 Paper: Reporting “Clinical Utility” in NICU Sequencing Studies: Systematic Review and Call for Rethinking
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller, Chris Feudtner, Katharine Callahan Use of exome and genome sequencing are expanding in the neonatal intensive care unit with the goals of…- Language and categorization
- precision medicine
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Panel: Permeable Membranes: How the blurring of boundaries and merging of silos should reshape ELSI research
ELSIcon2022 • Panel Session 7 • June 1, 2022 Brian Hutler, Debra Matthews, Rebecca Wilbanks Advancing understanding of the mechanisms of disease point to a growing number of examples of '…- Live
- Panel
- Reflections on the ELSI field
- precision medicine