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Job Posting
Research Coordinator I - ELSI
With interests in bioethics, social science, health policy, public health, epidemiology, or related field to work on an NIH-funded study examining the social, clinical, and ethical implications of…- ELSI
- Administrator
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Job Posting
Clinical Ethics Fellowship
The Institute for Bioethics & Health Humanities (IBHH) at the University of Texas Medical Branch (UTMB) invites applications for Clinical Ethics Fellowship, part of our broader Visiting Scholars…- Clinical Ethics
- Fellowship
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Video
Exploring Difference in the Biology Classroom: How to represent wide-ranging family structures and personal identities using the latest pedigree nomenclature
Co-Moderators: Marnie Gelbart, PhD (pgEd) & Robin Bowman, MEd (pgEd) Presenters: Ina Amarillo, PhD & Robin Bennett, MS, LGC, ScD Hon Pedigrees are a widely used tool in medicine,…- Pedigree
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Video
ELSIcon2022 Paper: Patients’ and Parents’ Perceived Utility of Genomic Sequencing: Instrument Development and Validation
ELSIcon2022 • Paper • May 31, 2022 Caryn Rubanovich, Jill Robinson, Sarah Classen, Janet Malek, Kyle B. Brothers, Benjamin Wilfond, Barbara Koenig, Carol Horowitz, Christine Rini, Barbara…- Live
- Paper
- tools
- Genetic testing and screening
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Grant Abstract
Use of Genetics in Neurologists' Clinical Practices
Recent rapid developments in genetic medicine are creating the expectation that genetic assessments will soon become integral to routine health care. Yet while such practices stand to have far-…- behavioral /social science research tag
- Clinical Research
- Genetic Counseling
- Genetic Screening
- health care personnel performance
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Publication
Immortal data: A qualitative exploration of patients’ understandings of genomic data
European Journal of Human GeneticsLyle and colleagues analyze how patients and their relatives conceptualize the “immortality” of genomic data. They find that participants focus on the simplicity of providing a sample instead of the… -
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Video
ELSIcon2022 Flash: Socioeconomic Status and Interest in Pursuing Genetic Testing for Hereditary Cancer in a US Based Population
ELSIcon2022 • Flash • June 3, 2022 Presented by: EJ Dusic Deborah J. Bowen, Robin Bennett, Tesia Theoryn, Kevin C. Cain, Elizabeth Swisher, Jeannine Brant, Brian Shirts, Catharine Wang…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Is Non-invasive Prenatal Testing Really Invasive? Examining Black Women’s Perceptions of Non-Invasive Prenatal Testing for Sickle Cell Disease
ELSIcon2022 • Paper • June 3, 2022 Presented by: Shameka Poetry Thomas Non-invasive prenatal testing (NIPT) has become standard prenatal care in the United States and is currently being…- Live
- Paper
- Uptake of genetic testing
- reproductive genetics