Terese Knoppers

Sandra Soo-Jin Lee, Ph.D.

Chief of the Division of Ethics, Columbia University; Professor of Medical Humanities and Ethics, Columbia University; Co-Director, Center for ELSI Resources and Analysis (CERA), NIH/National Human Genome Research Institute; Co-Director, ELSI Congress, NIH/National Human Genome Research Institute

Institution: Columbia University

AREAS OF EXPERTISE

Genetics, Race and Ethnicity, Community Engagement, Health Disparities, precision medicine

Stephanie M. Fullerton, DPhil

Professor, Bioethics and Humanities at the University of Washington

Institution: University of Washington

AREAS OF EXPERTISE

Health Equity, precision medicine, Data Governance, Biobanking, Stakeholder Engagement

Janet K. Shim, Ph.D.

Professor of Sociology & Chair, Department of Social and Behavioral Sciences, UCSF

Institution: University of California, San Francisco

AREAS OF EXPERTISE

Medical Sociology, Health and healthcare inequalities, Science and technology studies, Qualitative Methods

Nanibaa' Garrison, Ph.D.

Associate Professor at the University of California, Los Angeles

Institution: University of California, Los Angeles

AREAS OF EXPERTISE

Indigenous Communities, Community Engagement, data sovereignty, precision health

Dave Kaufman, Ph.D.

Program Director

Institution: NHGRI Division of Genomics and Society

AREAS OF EXPERTISE

clinical implementation, Data science, Stakeholder Engagement

Galen Joseph, Ph.D.

Professor

Institution: University of California, San Francisco

AREAS OF EXPERTISE

Cancer and clinical implementation of genomics, Socio-cultural meanings of genomics, ELSI Genomics, Communication Research, Stakeholder Engagement

Maya Sabatello, LLB, Ph.D.

Associate Professor of Medical Sciences (in Medicine) and (in Medical Humanities and Ethics)

Institution: Columbia University

AREAS OF EXPERTISE

ELSI Genomics, Disability policy and law, Community Engagement, children and adolescent/pediatrics, Human Rights

Jessica W. Blanchard, PhD

Researcher

Institution: Center for the Ethics of Indigenous Genomic Research, University of Oklahoma

AREAS OF EXPERTISE

ELSI, Indigenous Communities, Community Engagement, Anthropology

Jada L. Brooks, PhD, MSPH, RN, FAAN

Assistant Professor

Institution: University of North Carolina at Chapel Hill

AREAS OF EXPERTISE

Community Engagement, Racial Health Disparities

Karen M. Meagher, Ph.D.

Assistant Professor

Institution: Mayo Clinic

AREAS OF EXPERTISE

Ethical and organizational issues in biobanking, Public health pathogen genomics, precision public health, Antimicrobial resistance, Community Engagement

Paul Spicer, PhD, IMHE

Professor of Anthropology

Institution: University of Oklahoma

AREAS OF EXPERTISE

Indigenous Peoples, Community Engagement, Health Disparities

Krystal S. Tsosie, PhD, MPH, MA

Presidential Postdoctoral Fellow, Assistant Professor (01/23)

Institution: Arizona State University

AREAS OF EXPERTISE

race and genetics, Bioethics, Community Engagement, Indigenous, Big Data

Kyle B. Brothers, MD, PhD

Chief Scientific Officer

Institution: Norton Children's Research Institute Affiliated with the University of Louisville School of Medicine

AREAS OF EXPERTISE

Pediatric bioethics, Research Ethics, Genomic medicine, Biobank Ethics, Qualitative research

Horvey M. Palacios, MA

Graduate Researcher

Institution: University of Oklahoma

AREAS OF EXPERTISE

ancient DNA, Metagenomics, archaeology, sample collection, Health and healthcare inequalities

Sara L. Ackerman, PhD, MPH

Associate Professor

Institution: University of California San Francisco

AREAS OF EXPERTISE

Medical Anthropology, ELSI Genomics, Community Engagement, implementation science

Amy A. Lemke, PhD, MS

Director of Community Engaged Research

Institution: Norton Children's Research Institute, Affiliated with the University of Louisville

AREAS OF EXPERTISE

Qualitative Research, Precision population health, Community Engagement, implementation science, Genetic Screening / Genetic Testing

Holly L Peay, PhD, MS

Senior Research Scientist

Institution: RTI International

AREAS OF EXPERTISE

behavioral /social science, ELSI , clinical genomics, precision public health, Stakeholder Engagement

Stephanie A Kraft, JD

Assistant Professor

Institution: Seattle Children's Research Institute

AREAS OF EXPERTISE

Research Ethics, Informed Consent, Ethical considerations for machine learning/artificial intelligence in research/healthcare, Community Engagement, Health Equity

Susan Brown Trinidad, MA, PhD

Assistant Professor

Institution: University of Washington

AREAS OF EXPERTISE

Research Ethics, Qualitative Methods, Community Engagement, ELSI, Communication (7354)

Kristin E Childers-Buschle, MSc

Project Manager

Institution: Cincinnati Children's Hospital Medical Center

AREAS OF EXPERTISE

Human Genetics, Anthropology, Health and healthcare inequalities, Public Health

Michelle Nichols, PhD, RN

Associate Professor

Institution: Medical University of South Carolina

AREAS OF EXPERTISE

ELSI , Global Health Research, Mixed methods, Community Engagement, chronic disease management

Jennifer R Malinowski, MS, PhD

Market Access, Scientific and External Strategy

Institution: Janssen Scientific Affairs

AREAS OF EXPERTISE

Genetic Testing, health disparities, access to healthcare, patient engagement, clinical practice guidelines

Rebecca Mueller, LCGC, PhD

Fellow in Ethical, Legal, Social Implications of Genetics and Genomics

Institution: University of Pennsylvania

AREAS OF EXPERTISE

Qualitative research , Genetic Counseling, Disability ethics, Cystic Fibrosis, Uncertainty

Rosemarie Garland-Thomson, PhD

Professor emerita of English and bioethics

Institution: Emory University

AREAS OF EXPERTISE

Bioethical Issues, Health and healthcare inequalities, Disability Bioethics, Healthcare Ethics

Sarah LeBaron von Baeyer, PhD

Director of Ethics and Engagement

Institution: Variant Bio

AREAS OF EXPERTISE

Community Engagement, Return of Results, benefit sharing, Informed Consent, Commercial Sectors

Lisa Ridgway, BA, LLB, JD

Dr. Lisa Ridgway

Institution: University of British Columbia and University of Victoria and BC SUPPORT Unit

AREAS OF EXPERTISE

Community Engagement, Ethical Analysis, patient oriented research

Deborah Ekusai-Sebatta, MA, BS, PMP Diploma

Social Scientist

Institution: Makerere University College of Health Sciences, School of Biomedical Sciences

AREAS OF EXPERTISE

genomic data sharing, Behavioral and Social Science, Regulation, Qualitative research

Julia T Gordon, BA

Sociology Ph.D. student, Department of Social and Behavioral Sciences, UCSF

Institution: University of California, San Francisco

AREAS OF EXPERTISE

Science and technology studies, Disability studies, Health and healthcare inequalities, Medical Sociology, Open science