Utah Center for Human Genome Research Genesis/ELSI Core

The University of Utah Human Genome Center is proposing the creation of a core center for the study of the ethical, legal and social issues in human genetics. A multidisciplinary faculty will organize and conduct five activities as part of the core: 1)'Guidelines for Genetic Research in Families' will be prepared for use by IRB's, investigatory and research subjects on the ethical, legal, and social issues that arise in genetic research with families; 2) a'Fellowship Program' will be developed for two fellows per year; 3) a University ;'Seminar Series' will continue our intramural program of multidisciplinary seminars focused on the applications of contemporary genetic research; 4) an 'Ethics Forum' will continue to provide an opportunity for the discussion of contemporary issues by the young scientists involved in genetic research; and 5) 'Public Education' in the ethical, legal, and social issues in human genetics will be conducted through a collaboration with the Education and Outreach Core. The Utah ELSI core will be a strong, long term program of research and education on ELSI issues that will provide valuable support for investigators and subjects involved in human genetic research.