Scalable tools to effectively translate genomic discoveries into the clinic
Institution: BECKMAN RESEARCH INSTITUTE/CITY OF HOPE
FOA Number: RFA-HG-18-006
Abstract
PROJECT NARRATIVE/ RELEVANCE OF PROJECT TO RESEARCH AND PUBLIC HEALTH Widespread utilization of genomic sequencing in medicine creates an urgent need to educate providers and patients. Currently, providers frequently misinterpret genomic information and patients often don't understand their own test results. In order to address this critical need, we propose to design and test multiple e-Health communication tools that will help providers and patients to better understand genomic data, lead to higher quality patient care, and facilitate genomic information sharing within families.
FUNDING AGENCY:
Funder:
NIH
Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE
Funding Type:
R35
Project Number:
R35HG010721
Start Date:
Sep 1, 2019
End Date:
Jun 30, 2024
PROJECT TERMS:
Address, Area, Attitude, base, Caring, Cessation of life, Clinic, clinical care, clinical practice, Communication, Communication Tools, Community Physician, Data, design, Diabetes Mellitus, disorder prevention, disorder risk, Effectiveness, eHealth, Environment, Excision, exome, Family, Family member, Genetic, Genome, genome sequencing, genomic data, Genomic medicine, genomic platform, Genomics, Health, Healthcare, Human Genome, improved, Information Networks, Intervention, Interview, Lead, Malignant Neoplasms, Medicine, Methods, multidisciplinary, National Human Genome Research Institute, Natural Language Processing, online resource, Organ, Patient Care, Patients, Physicians, Positioning Attribute, premature, Process, Provider, Public Health, Randomized Controlled Trials, Research, Research Priority, Resources, Secure, Social Network, Sum, Test Result, Testing, tool, Translating, uptake, Vision, whole genome, Work