Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Institution: University of Rochester
FOA Number: PAR-20-255
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing collaborative team from the University of Puerto Rico and the University of Rochester proposes to extend previously-conducted pilot efforts around genetic research participation among Puerto Ricans to include the entire country of Puerto Rico and the Puerto Rican diaspora residing in the United States to better understand the impact of diaspora status, attitudes, beliefs, and experiences on likelihood of participating in research and to develop participant-centered strategies for their inclusion in research. Such work could contribute to reducing the justice-gap that exists among Puerto Ricans in genetic research.
NATIONAL HUMAN GENOME RESEARCH INSTITUTE
Aug 10, 2021
Jul 31, 2023