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NIH Sep 15, 2019 | U1
ELSI Biennial Congress
Institution: Columbia University
FOA Number: PA-18-648
Abstract
For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for individuals, families and communities and supported the growth of a generation of ELSI researchers. ELSI research has developed into a multidisciplinary field that spans the humanities, social sciences, natural sciences, engineering, medicine and law. Despite these developments, opportunities for ELSI researchers to present their research to their ELSI colleagues have been limited, as there is no regularly scheduled conference dedicated to ELSI research. Current opportunities are limited to ad hoc sessions in related professional meetings, and tend to be few in number and do not include the range of research or researchers conducting ELSI studies nor offer the depth of exchange and dialogue that a dedicated meeting would provide. To address the need for a regularly scheduled ELSI Congress, we propose to organize biennial ELSI Congresses in 2020, 2022, and 2024. Our multi-disciplinary team brings over two decades of experience in leading ELSI funded research and training programs and engaging a broad range of stakeholders in ELSI research and translational genomics. Guided by the principles of inclusion, diversity and access, the specific aims of this proposal are: 1. To organize three biennial Congresses (2020, 2022, 2024) that highlight high-quality, high-impact ELSI research. 2. To achieve diversity of perspectives and approaches represented in the Congresses towards the goal of increasing the rigor and expanding the intellectual base of ELSI research. 3. To use feedback from Congress organizers and participants to develop improved approaches and features with each subsequent meeting.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
U1Project Number:
U13HG010830Start Date:
Sep 15, 2019End Date:
Jun 30, 2024PROJECT TERMS:
American, base, Bioethics, Biomedical Research, Budgets, clinical care, Collaborations, Communities, Congresses, Databases, Department of Energy, design, Development, disability, Discipline, Emerging Technologies, Engineering, ethical legal social implication, Ethics, experience, falls, Family, Feedback, Funding, Generations, Genetic, Genetic Research, Genomics, Goals, Grant, Growth, Health, Human Genetics, Humanities, improved, Individual, innovation, Investments, Journals, Knowledge, Laboratories, Laws, Leadership, Medical Genetics, medical schools, Medicine, meetings, Methods, Mission, multidisciplinary, National Human Genome Research Institute, National Institute of Child Health and Human Development, Natural Sciences, next generation, outreach, Participant, programs, Publications, racial and ethnic, Reporting, Research, Research Personnel, Research Project Grants, Research Training, Resources, response, Schedule, Social Sciences, Societies, Speed, symposium, Training, Training Programs, translational genomics, Translations, Underrepresented Groups, United States National Institutes of Health, Universities, Work