NIH Sep 14, 2017 | R01

Ensuring Patients' Informed Access to Noninvasive Prenatal Testing

Principal Investigator(s): FARRELL, RUTH

Institution: CLEVELAND CLINIC LERNER COM-CWRU

FOA Number: PA-16-160

Abstract

PROJECT NARRATIVE The goal of this study is to study the effect of an evidence-based communication tool to support patients? decision-making about noninvasive prenatal genetic testing, by focusing on the communication that takes place in the clinical encounter. By doing so, we will also identify in the patient-provider interaction aspects that are key to implementing effective strategies responsive to the challenges posed by the continued development of NIPT involving new applications of sequencing technology that dramatically increase the volume and complexity of information available to expectant parents about the developing fetus. This project is relevant to public health because informed decision-making is not only a part of patient quality and safety initiatives but also a crucial step in the translational process that brings advances in obstetric and genetic science from the bench to the bedside.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
R01

Project Number:
R01HG010092

Start Date:
Sep 14, 2017

End Date:
Jun 30, 2021

PROJECT TERMS:

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