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NIH Aug 23, 2006 | F31
Probing Minority Views on Genetic Testing and Research
Institution: Virginia Polytechnic Institute and State University
FOA Number: PA-00-069
Abstract
Probing Minority Views on Genetic Testing and Research Grant # F31HG004124 Grant period: 08/23/2006 - 08/22/2009 Minorities, particularly African Americans and Hispanics, are under-represented when it comes to utilizing genetic testing and participating in genetic research. Previous studies, largely survey-based, have noted this situation but have not explained the reasons for this disparity. My research program is geared toward understanding the views of minorities concerning genetic testing and concerning their participation in genetic research. I will use ethnographic approaches, including one-on-one interviews and focus-groups, to obtain a representative group of oral histories. The recruitment for participation will be facilitated through contacts with various religious, business, health-care, and service organizations. The transcripts will be analyzed in-depth to identify historical, cultural, religious, economic, and educational issues. In addition, genetic testing for pharmacogenomic purposes will be explored to see if these new advances in genetic medicine are seen as appropriate or threatening and if genetic testing is seen as acceptable or not for this purpose.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
F31Project Number:
F31HG004124Start Date:
Aug 23, 2006End Date:
Aug 22, 2008PROJECT TERMS:
Africa, African American, Area, Attitude, base, Bidil, Businesses, Collection, Color, Communities, Depth, Disease, Dominican Republic, Economics, ethnic difference, Ethnic group, Ethnography, experience, Focus Groups, Generations, Genetic, Genetic Medicine, Genetic Predisposition Testing, Genetic Research, Genetic screening method, Genetic Services, Genetics and Medicine, health care service organization, Hispanics, Individual, interest, Interview, Literature, Methodology, Minority, Minority Groups, Oral, Parents, Pharmaceutical Preparations, pharmacogenomics, Population Research, Predisposition, prenatal, programs, Publishing, Puerto Rico, Purpose, Recording of previous events, Religion and Spirituality, Reporting, Research, Sampling, Services, Subgroup, Surveys, Testing, Transcript, United States