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NIH Sep 17, 2021 | R01
Self-governance in the Human Genome Editing Era: Can Science Rise to the Challenge?
Institution: Baylor College of Medicine
FOA Number: PA-20-272
Abstract
PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these technologies. The He Jiankui controversy is the primary example of the potential exploitation of HGE and the importance of self-governance. This project will be the first case-study to evaluate self-governance in the realm of human genome editing technologies, the findings of which will be validated through a survey of HGE scientists.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
R01Project Number:
R01HG010332Start Date:
Sep 17, 2021End Date:
May 31, 2023PROJECT TERMS:
Area, base, Basic Science, Biological Sciences, Case Study, Child, China, Clustered Regularly Interspaced Short Palindromic Repeats, Contraceptive methods, CRISPR/Cas technology, Data, Data Analyses, Databases, Development, disability, Disease, Embryo, Engineering, ethical legal social implication, Ethics, Evaluation, Evolution, experience, experimental study, Explosion, Failure, follow-up, Future, Genes, Genetic Diseases, Genetic Materials, genetic technology, Genome, genome editing, Goals, Hand, Human, Human Genome, improved, Individual, infertility treatment, insight, Institution, interest, Interview, Knowledge, Legal, Link, Medicine, Mentors, Methods, Modeling, Organism, parent grant, Policies, Policy Making, Politics, prevent, Reporting, reproductive, Research, Research Personnel, response, Retinal blind spot, Role, safety and feasibility, Science, Science Policy, Scientific Inquiry, Scientist, social, Structure, Surveys, Technology, Testing, Thick, Time, tool, Trust, United States National Academy of Sciences, United States National Institutes of Health, Work
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