Announcement

CERA Working Groups - Call for Proposals

The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…

ELSI FRIDAY FORUM

ELSI Friday Forum Seminar Series

ABOUT ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical, legal, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00 pm ET…

Spotlight

Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice

The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…

NIH Announcement

NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens  

On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Da

Spotlight

Genetics and Responsibility: More Complicated Than We’d Thought

Watch the recordings of the symposium here By Erik Parens, PhD and Paul S. Appelbaum, MD

ELSIhub News

Why it is Important to Call Out Racist Language Amongst Our Professional Peers

Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…

Spotlight

Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group

Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…