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Announcement
CERA Co-Director Mildred Cho Recognized for Outstanding Mentorship with Inaugural Bernard Lo, MD Award in Bioethics
Mildred Cho, PhD, Professor of Pediatrics and Medicine at Stanford University, has been named the recipient of The Greenwall Foundation’s inaugural Bernard Lo, MD Award in Bioethics. The Lo Award… -
Announcement
Announcing a New Special Issue of the Journal of Literature and Science
We are pleased to announce the publication of a special issue of the Journal of Literature and Science, Fictions of Genetic Privacy, co-edited by Jay Clayton and Claire Sisco King. It features nine… -
NIH Announcement
Solicitation of Nominations for the 2022 NHGRI’s Outstanding Award for Enhancing Diversity, Equity, Inclusion, and Accessibility in the Genomics Workforce
View Notice online Notice Number: NOT-HG-22-014, Release Date: June 7, 2022 -
Spotlight
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90… -
NIH Announcement
All of Us Research Program Seeks Input on Environmental Health Data
The National Institutes of Health’s All of Us Research Program has issued a Request for Information (RFI) to gather public suggestions on integrating environmental health data… -
Spotlight
SNAPSHOTs: Expanding ELSI Education
Announcing the Personal Genetics Education Project (pgEd) / CERA Partnership -
Spotlight
New ELSIconversations with the Ancestry and Diversity Working Group of ClinGen
The Ancestry and Diversity Working Group (ADWG) of the Clinical Genome Resource (ClinGen) was founded in 2017, with the goal of providing guidance about how population descriptors such as race,… -
Spotlight
Value Ethics: Mapping Strategies for Value Assessment and Reimbursement of Targeted Genomic Therapies for Rare Diseases – A New CERA Working Group
CERA Working Groups are interdisciplinary teams that aim to deepen our understanding of emerging, high priority, or understudied ELSI issues using innovative approaches. CERA selects one or two…