Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
81 - 90 of 189 Research Tools
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Influences on Precision Medicine Knowledge and Attitudes (Survey)
Year: 2020This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their attit
Research Population: AdultsContact: [email protected] -
Trust in Medical Researchers (Full and Short Scales)
Year: 2006Hall and colleagues report the development and validation of 12-item survey and a short form (4-item) survey designed to measure trust in medical researchers.
Research Population: AdultsValidation(s):- Cunningham-Erves, J., Villalta-Gil, V., Wallston, K. A., Boyer, A. P., & Wilkins, C. H. (2019). Racial differences in two measures of trust in biomedical research. Journal of clinical and translational science, 3(2-3), 113-119.
- Hall, M. A., Camacho, F., Lawlor, J. S., DePuy, V., Sugarman, J., & Weinfurt, K. (2006). Measuring trust in medical researchers. Medical care, 44(11), 1048-1053.
Contact: [email protected] -
Trust in Medical Researchers Scale
Year: 2006Mainous and colleagues report the development and validation of the 12-item Trust in Medical Resesearchers Scale. This scale is designed to be self-administered.
Research Population: AdultsValidation(s):- Cunningham-Erves, J., Villalta-Gil, V., Wallston, K. A., Boyer, A. P., & Wilkins, C. H. (2019). Racial differences in two measures of trust in biomedical research. Journal of clinical and translational science, 3(2-3), 113-119.
- Mainous, A. G., Smith, D. W., Geesey, M. E., & Tilley, B. C. (2006). Development of a measure to assess patient trust in medical researchers. The Annals of Family Medicine, 4(3), 247-252.
Contact: [email protected] -
Scenarios for Ethical and Legal Analysis of Genomic Data Sharing Practices
Year: 2020McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia.
Research Population: AdultsValidation(s):McWhirter, R., Eckstein, L., Chalmers, D., Critchley, C., Nielsen, J., Otlowski, M., & Nicol, D. (2020). A scenario-based methodology for analyzing the ethical, legal, and social issues in genomic data sharing. Journal of Empirical Research on Human Research Ethics, 15(4), 355-364.
Contact: [email protected] -
Preferences for the Provision of Whole Genome Sequencing Services Among Young Adults
Year: 2017This survey was designed for use with the 10-minute video, Whole Genome Sequencing and You (available in this database).
Research Population: AdultsContact: [email protected] -
Genetic Knowledge Index
Year: 2018Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for
Research Population: AdultsContact: [email protected] -
Support of Science and Technology Scale
Year: 2018Clarke and colleagues created this measure of support of science and technology (SST) for use in a study that assessed willingness to pay for expanded carrier screening.
Research Population: AdultsContact: [email protected] -
Preferences and Expectations for Return of Individual Research Results Survey
Year: 2021Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results.
Research Population: AdultsContact: [email protected] -
Choice Based Conjoint (CBC) Survey, Preferences for Information About Incidential Findings
Year: 2017Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different attrib
Research Population: AdultsContact: [email protected] -
Consent Preferences of UK Research Volunteers for Genetic and Clinical Studies Survey
Year: 2015This survey assesses views on aspects of the consent process, including willingness to share medical information and DNA for different research purposes, including controversial areas of research…
Research Population: AdultsContact: [email protected]