Document Type
Survey
Title

Preferences and Expectations for Return of Individual Research Results Survey

Author(s):

Author Name(s)
Sayeed, Sabina
Califf, Robert
Green, Robert
Wong, Celeste
Mahaffey, Kenneth
Gambhir, Sanjiv Sam
Mega, Jessica
Patrick-Lake, Bray
Frazier, Kaylyn
Pignone, Michael
Hernandez, Adrian
Shah, Svati H.
Fan, Alicia C.
Krug, Sarah
Shaack, Terry
Shore, Scarlet
Spielman, Susie
Eckstrand, Julie
Wong, Charlene A.
Project Baseline Health Study Research Group

Year:

Year
2021

Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results. The survey includes questions about which results participants would be willing to share with clinical professionals (e.g., doctor, nurse), confidence in the safety of their personal health information, perception of the potential benefits, feelings upon getting results, interest in future test results, and other topics.

Research Population:

Research Population
Adults

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