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Genetic Knowledge Index

Author(s):

Clarke, Elizabeth V.
Schneider, Jennifer L.
Lynch, Frances
Kauffman, Tia L.
Leo, Michael C.
Rosales, Ana G.
Dickerson, John F.
Shuster, Elizabeth
Wilfond, Benjamin S.
Goddard, Katrina A. B.

Year:

2018

Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for expanded carrier screening. The index is a set of 9 yes or no questions includings items that assess participant understanding of the test results.

Research Population:

Adults

Citation:

Clarke, E. V., Schneider, J. L., Lynch, F., Kauffman, T. L., Leo, M. C., Rosales, A. G., Dickerson, J. F., Shuster, E., Wilfond, B. S., & Goddard, K. A. (2018). Assessment of willingness to pay for expanded carrier screening among women and couples undergoing preconception carrier screening. PloS One, 13(7), e0200139.

https://doi.org/10.1371/journal.pone.0200139

Contact:

[email protected]

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