How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument

The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial classification decisions about other people. The survey includes demographic questions (including race, country of origin, political party affiliation, political views, gender, age, education, income, etc.) as well as belief in genetic essentialism, racial attitudes, and beliefs about the relevance of genetic ancestry testing in medicine measures.

The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire

Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-environment interaction. The questionnaire also explores opinions and beliefs regarding genetic determinism and genetic testing and other technologies.

Interview Guide: Diverse Parental Perspectives of the Social and Educational Needs for Expanding Newborn Screening through Genomic Sequencing

Timmins and colleagues created this semi-structured interview guide to explore parents' perspectives on expanded newborn screening through genomic sequencing. Questions explore parent's attitudes towards screening in different scenarios and for different conditions, privacy concerns, preferences for receiving information, and making informed choices.

Inteview Guide: Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing

Ziegler and colleagues developed this semi-structured, qualitative, interview guide to elicit perspectives from Black/African-American participants on direct-to-consumer genetic testing. Topics include participants' experiences with ordering DTC GT kits, using the kits, and receiving their DNA test results.

"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)

"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with learning and sharing DNA results. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.

"What are the Risks?", Video for American Indian and Alaska Native Participants, All of Us Research Program

"What are the Risks?" is a 3 minute video for American Indian and Alaska Native participants of the All of Us Research Program (All of Us) that describes the various risks involved with learning and sharing DNA results. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.

"How Could Finding Out My DNA Results Help Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)

"How Could Finding Out My DNA Results Help Me?" is a 54 second video, created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants, that explains some of the ways that DNA results may benefit them. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.

"How Could Finding Out My DNA Results Help Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program

"How Could Finding Out My DNA Results Help Me?" is a 54 second video, created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants, that explains some of the ways that DNA results may benefit them. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.

"What Will You Tell Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)

"What Will You Tell Me?" is a 2 minute 23 second video created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants. It provides information on the various types of DNA results participants may receive. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.

"What Will You Tell Me?", Video for American Indian and Alaska Native Participants, All of Us Research Program

"What Will You Tell Me?" is a 2 minute 23 second video created by the All of Us Research Program (All of Us) for American Indian and Alaska Native participants. It provides information on the various types of DNA results participants may receive. All of Us is a health research program, funded by the National Institutes of Health, with the goal of studying health data from over one million people in the United States, including individuals traditionally underrepresented in health research.