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Social Norms in Selective Reproduction: Implications for the Wide Offer of Genetic Screening Technologies
The ability to offer genetic information to inform reproductive decisions, for example through reproductive genetic carrier screening, expanded prenatal testing, or preimplantation embryo screening,…- genetic screening
- Reproduction
- genetic technologies
- disability
- prenatal testing
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Video
New ACMG Guidance on Carrier Screening: More or Less Equitable?
ELSI Friday Forum • December 10, 2021 Next-generation sequencing capabilities have enhanced general population carrier screening by expanding the number of genes and variants on carrier screening…- carrier screening
- Genetic Counseling
- ethics of prenatal testing
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Collection
Expanded Carrier Screening (ECS): Clinical and Ethical Considerations for Genetic Counseling
Targeted carrier screening began over 50 years ago with a focus on populations at increased risk for specific genetic conditions based on patient-reported racial, ethnic, or ancestral background. As…- expanded carrier screening
- genetic counseling
- genetic technologies
- carrier screening
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Video
Addressing Racism in Medical Research and Publishing
A Discussion for Journalists • November 30, 2021 Racism and unconscious bias persist in medical research. Given that journalists who write, or aspire to write, about medicine look at journals for…- racism in medicine. medical research, and publishing
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Video
Precision Medicine Research, ‘All of Us’, and Inclusion
A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…- All of Us
- precision medicine research
- inclusion
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Funding Opportunity
Innovative Screening Approaches and Therapies for Screenable Disorders in Newborns (R01 - Clinical Trial Optional)
- Therapeutic Intervention
- Newborn screening
- genetic conditions
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Funding Opportunity
Innovative Screening Approaches and Therapies for Screenable Disorders in Newborns (R03 - Clinical Trial Optional)
- Therapeutic Intervention
- Newborn screening
- genetic conditions
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Funding Opportunity
Innovative Screening Approaches and Therapies for Screenable Disorders in Newborns (R21 - Clinical Trial Optional)
- Newborn screening
- Therapeutic Intervention
- genetic conditions
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Video
Benefit-sharing and Pharmaceutical Development in Africa: What Does Equity Mean?
ELSI Friday Forum • November 12, 2021 There is an ongoing concern that collaborative genomic research conducted in lower- and middle-income countries by partners in high-income countries, is…- benefit sharing
- African genetics
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Collection
Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa
Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific…- ethical engagement
- benefit sharing
- Africa
- Collaborations
- genomic research