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Video
Addressing Racism in Medical Research and Publishing
A Discussion for Journalists • November 30, 2021 Racism and unconscious bias persist in medical research. Given that journalists who write, or aspire to write, about medicine look at journals for…- racism in medicine. medical research, and publishing
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Video
Precision Medicine Research, ‘All of Us’, and Inclusion
A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…- All of Us
- precision medicine research
- inclusion
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Video
Benefit-sharing and Pharmaceutical Development in Africa: What Does Equity Mean?
ELSI Friday Forum • November 12, 2021 There is an ongoing concern that collaborative genomic research conducted in lower- and middle-income countries by partners in high-income countries, is…- benefit sharing
- African genetics
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Collection
Advancing Ethical Engagement and Benefit Sharing Within International Collaborative Genomic Research Partnerships in Africa
Due to advances in genomic sequencing and reduced costs, the development of statistical techniques and technologies for analysis of large datasets, and a scientific interest in population-specific…- ethical engagement
- benefit sharing
- Africa
- Collaborations
- genomic research
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Video
Law Enforcement and Genetic Data: A Discussion for Journalists
Law Enforcement and Genetic Data: A Discussion for Journalists • October 26, 2021 This is the second in a series "Genomics in Society: New Developments, New Questions: Discussions with…- Law Enforcement
- Genetic Data Sharing and Management
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Video
Genomics, Human Behavior, and Social Outcomes
Genomics, Human Behavior, and Social Outcomes • October 12, 2021 This is the first in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by…- ELSI
- Journalism
- Sociogenomics
- Behavioral Genetics
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Video
Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum • October 8, 2021 Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…- Data Governance
- data sovereignty
- genomic data sharing policy
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Collection
Technologies to Operationalize Indigenous Data Sovereignty
Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…- Indigenous data
- Indigenous Communities
- Big Data
- decolonization
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Video
Welcome and Opening Remarks
Welcome and opening remarks to the ELSI Virtual Forum Sandra Lee, PhD Mildred Cho, PhD -
Video
Remembering 9/11: Ethical, Legal and Social Issues with Using DNA for Disaster Victim Identification
ELSI Friday Forum • September 10, 2021 Following the attack on the World Trade Center in New York City on September 11, 2001, investigators engaged in the greatest forensic challenge in the US and…- Disaster victim identification (DVI)