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Grant Abstract
Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)
PROJECT NARRATIVE This study aims to investigate facilitators and barriers to long-term equitable partnerships in genomics research between communities and research institutions. We focus on legal…- community based participatory research
- trustworthiness
- stakeholder perspectives
- Beneficence
- Decision making
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Grant Abstract
Managing the Uncertainty of Genetic Information in Neonates
PROJECT NARRATIVE Genetic testing is increasingly used in ill neonates and holds promise to improve care, but the uncertainty of many genetic results complicates their application to clinical…- Decision making
- genetic association
- genetic counselor
- exome sequencing
- variant of unknown significance
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Grant Abstract
iDASH Genome Privacy and Security Competition Workshop
Project Narrative We will continue the effort to promote the development of novel yet practical solutions for important privacy and security challenges in human genomic research, via organizing…- data sharing
- genomic data
- computer science
- Biomedical informatics
- Security
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Event
ASBH 26th Annual Conference
ASBH 26th Annual Conference What Does It Mean to be Human? As we watch the meteoric rise of artificial intelligence technology, we are confronted with increasingly complex moral… -
Event
ASHG Annual Meeting 2024
We are excited to bring the ASHG 2024 Annual Meeting to Denver, Colorado, from November 5-9. Over the course of 5 days, the meeting will cover a broad spectrum of topics including new technologies,… -
Grant Abstract
Demographic Patterns of Eugenic Sterilization in Five U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
PROJECT NARRATIVE Between 1907 and the mid-1970s, 32 US states passed and implemented eugenic sterilization laws that authorized the sterilization of people considered unfit. Our epidemiological,… -
Grant Abstract
The Stanford Training Program in ELSI Research
This application is for continued T32 support of a research training program at Stanford University to create independent scholars who can conduct rigorous research on ethical, legal and social…- ethical legal social implication;Research;Training Programs
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Grant Abstract
Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics
Project Narrative Genomic technologies promise to transform our understandings of human biology and history and offer unprecedented power to influence the health of individuals and generations. Such…- ethical legal social implication;Genetic;Genomics;post-doctoral training;Training Programs
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Grant Abstract
University of Michigan Training Program in ELSI Research
PROJECT NARRATIVE Advances in genomic science are rapidly presenting both great opportunities and complex challenges for medicine and public health. In order for the potential benefits of these…- ethical legal social implication;Michigan;Research;Training Programs;Universities
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Event
The 6th ELSI Congress | ELSIcon2024
ELSIcon2024: The 6th ELSI Congress will take place at Columbia University in New York City from June 10-12, 2024. The 6th ELSI Congress welcomes all with an interest in the ethical, legal, and…