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Grant Abstract
"American Indian and Alaska Native Genetics Research Policy Formulation Meeting"
The ELSI program, together with NIGMS, provided funding for an American Indian and Alaska Native Genetics Research Policy Formulation Meeting, which was held in Rio Rancho, New Mexico on February 7-9… -
Grant Abstract
Genetic Ties and the Future of the Family
The proposed research is a comprehensive assessment of the ethical, legal and social implications of non-forensic identity testing, with a special focus on implications for families. The research… -
Grant Abstract
Family as Context for Clinical Genetics
The Family as Context in Clinical Genetics Project (FCCGP) is an innovative Web-based curriculum that focuses on the integration of the new genetic knowledge into clinical practice and uses the… -
Grant Abstract
Enhancement Ethics and the Molecular Genetics of Aging
Advances in the molecular genetics of cellular aging raise the prospect of intervening in the human aging process to dramatically extend the human life span. The development of such interventions… -
Grant Abstract
Developing and Deploying the DNA Patent Database
This 2-part project will enhance the usefulness of the existing DNA Patent Database and perform a pilot study of the licensing practices and policies of academic institutions. Specifically, it will… -
Grant Abstract
Outcomes of Genetic Testing for Hearing Impairment
Sensorineural hearing loss (SNHL) is a heterogeneous group of disorders that collectively represent the most common congenital deficit in humans. More than 100 genes have been implicated in SNHL. Our… -
Grant Abstract
Genetic Counseling Processes and Analogue Client Outcome
Genetic counseling provides the translational link between the new technologies of testing and the ability of individuals to engage in a process of informed decision-making. The dense and abstract… -
Grant Abstract
Ethical and Cultural Implications of Specimen Banking Among Alaska Native People
Ethical and Cultural Implications of Specimen Banking among Alaska Native People is proposed by Principal Investigator Ruth A. Etzel, M.D., Ph.D. The aims of this project are to: 1) determine the… -
Grant Abstract
SouthCentral Research Foundation NARCH
In the Southcentral Foundation Research Center for Alaska Native Health (RCANH), SCF will position itself to achieve the chief purpose of NARCH - "to reduce health disparities, enhance… -
Grant Abstract
Beyond Data Security: Promoting Confidentiality and Advancing Science
A range of potential solutions has been proposed to the confidentiality challenges in genome research and how best to proceed in this era of "big data" is not known. Some advocate measures…