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Grant Abstract
Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…- Address
- Attitude
- Belief
- Belmont Report
- benefit sharing
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In the Media
Controversy flares over informing research subjects about ‘incidental’ genetic findings
Science News |Meredith Wadman- incidental findings/return of results
- All of Us Research Program
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In the Media
ACMG Carrier Screening Guidelines: Falling Short On Equity and Inclusion
The DNA Exchange |Katie Stoll and Robert Resta- Genetic Counseling / Prenatal Diagnosis
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In the Media
A New Kind of Embryo Genetics Screening Makes Big Promises on Little Evidence
SLATE |Kyle W. Davis- Polygenic risk scores
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Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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In the Media
Mixed-ancestry genetic research shows a bit of Native American DNA could reduce risk of Alzheimer’s disease
The Conversation |Diane Xue and Hanley Kingston- Indigenous American
- genetic ancestry
- Alzheimer disease
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In the Media
More Genetic Clues to COVID-19 Susceptibility and Severity
NIH Director's Blog |Francis Collins- COVID-19 pandemic
- Genetics
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In the Media
WHO should lead on genome-editing policy, advisers say
Nature News |Heidi Ledford- genome editing
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In the Media
A New Era of Designer Babies May Be Based on Overhyped Science
Scientific American |Laura Hercher- designer babies
- Gene Editing
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In the Media
Human genome editing: recommendations
World Health Organization |WHO Health Ethics & Governance Team- human germline genome editing