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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…- Address
- Attitude
- Belief
- Belmont Report
- benefit sharing
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Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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Grant Abstract
Framework for Advances in Reprogenomics Ethics & Regulation (FAIRER)
PROJECT NARRATIVE Research in reproductive genomics is shifting, from diagnostics to interventions in the human genome, epigenome, and microbiome. But we lack ethical guidance about how to conduct…- Address
- Advocate
- Area
- Attention
- Bioethics Consultants
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Grant Abstract
Polygenic Embryo Screening: Towards Informed Decision-Making
PROJECT NARRATIVE Recent progress in complex trait genetics, coupled with the technical ability to generate accurate genome-wide genotypes from single-cell input, has made it possible to genetically…- Alleles
- Aneuploidy
- Assisted Reproductive Technology
- Attitude
- base
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Grant Abstract
Surfacing values in the economic evaluation of genomic sequencing for diagnosis of children with rare diseases
PROJECT NARRATIVE Though any single rare disease is by definition uncommon, together these diseases affect nearly 30 million individuals in the United States, two-thirds of whom are children, and…- Affect
- Anthropology
- base
- Bioethics
- career
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