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Grant Abstract
Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests
PROJECT NARRATIVE The proposed K01 Award?'Evaluating the Risks and Benefits of the Next Generation of Direct-to-Consumer Genetic Tests??will enable the candidate to acquire the academic…- Address
- adverse outcome
- Affective
- base
- Behavioral
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Grant Abstract
Actionable Ethics Oversight for Human-Animal Chimera Research
PROJECT NARRATIVE Advances in genome editing, embryology, and stem cell science are making it possible to imagine, and create, new kinds of human-animal chimeras that are both more biologically and…- Adopted
- animal breeding
- Animal Experimentation
- Animal Welfare
- Animals
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Grant Abstract
Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results
PROJECT NARRATIVE This application builds on the R01 study the Ethics of Inclusion: Diversity in Precision Medicine Research and aims to investigate the preferences of African American and Hispanic/…- Address
- African American
- All of Us Research Program
- American
- behavioral health
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Grant Abstract
Ensuring Patients' Informed Access to Noninvasive Prenatal Testing
PROJECT NARRATIVE The goal of this study is to study the effect of an evidence-based communication tool to support patients? decision-making about noninvasive prenatal genetic testing, by focusing on…- Aneuploidy
- Attitude
- bench to bedside
- Clinical
- clinical encounter
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Grant Abstract
Enhancing Diversity among Future ELSI Researchers
The proposed R25 Research Education Program is devoted to building a 15-month research mentorship program at the Johns Hopkins Berman Institute of Bioethics (BI) for students from diverse,…- Area
- Baltimore
- Bioethics
- career
- cohort
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Grant Abstract
Prenatal Preparation: Actions and Results
PROJECT NARRATIVE Preparation is often cited as a reason for offering and for accepting prenatal genetic screening and diagnosis. However, this term has no clear definition, and thus it is impossible…- Advocacy
- Advocate
- Bioethics Consultants
- Child
- Clinical
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Grant Abstract
Incidental Enhancement: Addressing a Neglected Policy Issue in Human Genome Editing
PROJECT NARRATIVE This project is relevant to public health because achieving the health benefits of preventive gene editing research will depend on governance that is responsive to public concerns.…- Address
- Affect
- Agreement
- Animal Experimentation
- Animals
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Grant Abstract
The Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics
Project Narrative Genomic technologies promise to transform our understandings of human biology and history, and offer unprecedented power to influence the health of individuals and generations. Such…- ethical legal social implication
- Genetic
- Genomics
- post-doctoral training
- Training Programs
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Grant Abstract
Admin. Supplement to: Ensuring Patients' Informed Access to Noninvasive Prenatal Testing
PROJECT NARRATIVE The goal of this study is to study the effect of COVID-19 on prenatal healthcare delivery, specifically patients' ability to access prenatal genetic screening and diagnostic…- 2019-nCoV
- Affect
- Attention
- base
- Benefits and Risks
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Grant Abstract
Microbiome-Based Diagnostics: Stakeholder Perceptions and Implications for the Regulatory Framework
Project Narrative There is much that is not yet known about the implications of microbiome-based diagnostic or screening test results and, similar to the early days of genetic testing, it is possible…- Address
- Area
- Award
- Baltimore
- base