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NIH Feb 23, 2019 | R01
Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results
Institution: COLUMBIA UNIVERSITY HEALTH SCIENCES
FOA Number: PA-18-591
Abstract
PROJECT NARRATIVE This application builds on the R01 study the Ethics of Inclusion: Diversity in Precision Medicine Research and aims to investigate the preferences of African American and Hispanic/Latino communities, including the uninsured, who are being recruited into precision medicine research for different types of genetic test results and their expectations and needs for information and resources to allow for informed, validated follow-up of research results and clinical care.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
R01Project Number:
R01HG010330Start Date:
Feb 23, 2019End Date:
Jun 30, 2022PROJECT TERMS:
Address, African American, All of Us Research Program, American, behavioral health, Biological, Biomedical Research, Caring, Categories, Clinical, clinical care, cohort, Communities, Conceptions, Data, Disease, disorder risk, Enrollment, Ensure, Ethics, European, expectation, Family member, Focus Groups, follow-up, Genetic, Genetic Research, genetic testing, Genomics, Goals, Health, health data, health disparity, Hispanics, Individual, Information Services, Interview, Knowledge, Latino, New York City, Parents, Participant, Pharmaceutical Preparations, Policies, Population, precision medicine, preference, recruit, Research, Research Personnel, Resources, response, retention rate, Risk Factors, Scientist, social, Test Result, Testing, trait, Trust, Underrepresented Groups, Uninsured, United States National Institutes of Health
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