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News
FAQs on Human Genomics Studies
FAQs on Human Genomics Studies are produced and managed by The Hastings Center "The need for socially responsible communication about genomics research is greater than ever. New research into…- FAQs
- FoGS
- knowledge repository
- Behavioral genomics
- Behavioral and Social Science
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Video
Welcome and Opening Remarks
Welcome and opening remarks to the ELSI Virtual Forum Sandra Lee, PhD Mildred Cho, PhD -
Video
Remembering 9/11: Ethical, Legal and Social Issues with Using DNA for Disaster Victim Identification
ELSI Friday Forum • September 10, 2021 Following the attack on the World Trade Center in New York City on September 11, 2001, investigators engaged in the greatest forensic challenge in the US and…- Disaster victim identification (DVI)
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News
Creating and Sharing Animated Videos to Communicate ELSI Concepts: An Interview with Mildred Cho
In August, Mildred Cho, PhD, a long-time member of the ELSI scholarly community, and Professor in the Department of Pediatrics, Division of Medical Genetics and in the Department of Medicine at…- research tools
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News
Request for Abstracts: ELSIcon2022
ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 • Columbia University, New York, NY Research on the ethical, legal, and social implications (ELSI) of genetics research… -
News
CERA Working Groups - Call for Proposals
The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…- working group
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Video
Current Legal Challenges to Abortion: Implications for Prenatal Genetics
ELSI Friday Forum • July 9, 2021 Multiple US states have passed laws limiting the ability to terminate a pregnancy affected by Down syndrome or other genetic conditions, with the Ohio version of…- Prenatal Counseling
- prenatal genetic testing
- Legal Aspects
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News
Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice
The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…- genome informed consent
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News
NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens
On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Data and Biospecimen Sharing for Future…- Consent
- data and biospecimens consent
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Video
Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease
ELSI Friday Forum • June 11, 2021 Pilar Ossorio, JD, PhD, moderates this session with panelists Liza-Marie Johnson, MD, MPH, MSB, and Melissa Creary, PhD, MPH, describing the…- sickle cell disease
- Gene Therapy / Gene Transfer
- Genetic Intervention
- Gene Transfer