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ELSI Friday Forum 2021

Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease


ELSI Friday Forum • June 11, 2021

Pilar Ossorio, JD, PhD, moderates this session with panelists Liza-Marie Johnson, MD, MPH, MSB, and Melissa Creary, PhD, MPH, describing the current state of therapy for sickle cell disease, and some ethical issues that arise in the emerging use of gene transfer or gene editing for treating the disease. Dr. Johnson focuses on ethical issues identified by patients, and Dr. Creary discusses some of the social and historical ethical challenges that relate to genetic interventions for sickle cell.

Please see the attached transcript and resources files (located in the upper right-hand corner of the page) for more information.


sickle cell disease
Gene Therapy / Gene Transfer
Genetic Intervention
Gene Transfer

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