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Research Tool
Baseline Impact of Personal Genomics (PGen) Study Survey
Carere and colleagues created the Baseline Impact of Personal Genomics (PGen) Study Survey to collect information about why participants chose to pursue direct-to-consumer personal genomic testing (… -
Research Tool
2 Week Follow-Up Personal Genomics (PGen) Study Survey
Carere and colleagues created the 2 Week Follow-Up Personal Genomics (PGen) Study Survey to measure experiences related to direct-to-consumer personal genomic testing (PGT) approximately 2 weeks… -
Research Tool
6 Month Follow-Up Personal Genomics (PGen) Study Survey
Carere and colleagues created the 6 Month Follow-Up Personal Genomics (PGen) Study Survey to measure experiences related to direct-to-consumer personal genomic testing (PGT) approximately 6 months… -
Research Tool
6 Month Follow-Up Non-Responder Personal Genomics (PGen) Study Survey
Carere and colleagues created the 6 Month Follow-Up Non-Responder Personal Genomics (PGen) Study Survey, a short 5 minute survey sent to study participants who had not responded to the 6 Month Follow… -
Research Tool
REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale
Chung and colleagues created the REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale to measure psychological impact of genetic susceptibility testing for Alzheimer disease (AD).… -
Research Tool
Survey, Support for Government Regulation of GMO Foods and Percived Risk of GMO Products
This survey assesses support for government regulation of GMO foods and percived risk of GMO products. -
Research Tool
Newborn Whole Genome Sequencing Scenarios
Goldenberg, Dodson, Davis, & Tarini created two scenarios to assess parents’ interest in whole-genome sequencing (WGS) for newborns. Participants were either given a scenario in which WGS was… -
Research Tool
Semi-Structured Interview Guide: Storage and Use of Residual Newborn Bloodspots
Botkin and colleagues created this semi-structured interview guide to uncover what prospective parents are interested in knowing about the practice of retaining residual newborn screening bloodspots… -
Research Tool
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP. -
Research Tool
The IntegratedEthics Facility Workbook
The IntegratedEthics Facility Workbook (IEFW), created by the National Center for Ethics in Health Care, is an evaluation tool that helps health care facilities improve ethical practices and track…