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Video
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era
This ELSI Friday Forum took place on June 9, 2023. Rapid growth in genetic understanding presents challenges for expectant parents, now complicated by the Dobbs decision’s removal of federal…- genetic privacy
- Legal
- Policy
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Additional Resource
Qualitative Data Sharing (QDS) Toolkit
The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner.…- qualitative data
- data sharing
- 2023 NIH Data Management and Sharing Policy
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Video
Value and Values in Payment for Gene Therapies
The ELSI Friday Forum was held on May 12, 2023. Advances in gene therapies for monogenic disorders have brought hope of curative treatment. Since the Food and Drug Administration first approved a…- gene therapies
- cost of gene therapies
- payment
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Video
Exploring Complexity in the Biology Classroom: Beyond Mendel: Leading with Complexity when Teaching Human Genetics
Presenters: Shawneequa Callier, JD, MA & Eimear Kenny, PhD Moderator: Rob O'Malley, PhD Date: May 11 2023 3-4 pm PT / 6-7 pm ET Teaching Mendelian patterns of inheritance is a…- biology education
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Video
Visual Storytelling in ELSI Research
The ELSI Friday Forum was held on Friday, April 14, 2023. “A picture is worth a thousand words” - this widely understood sentiment could play a vital role in ELSI research and communication about…- Visual storytelling
- Community Engagement
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Video
Exploring Difference in the Biology Classroom: What Genetic Ancestry Tests Mean (and What They Don't)
Presenters: Janina Jeff, PhD, MS & Jada Benn Torres, PhD Co-Moderators: Rob O'Malley, PhD & Nadine Vincenten, PhD Date: April 11 2023, 3-4 pm PT / 6-7 pm ET Genetic…- DTC
- genetic ancestry testing
- race and genetics
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Additional Resource
Accessible PowerPoint Presentations
The Stanford University Office of Digital Accessibility provides a step-by-step guide on how to create accessible PowerPoint presentations.- accessibility
- PowerPoint
- Stanford University
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Additional Resource
Accessible PowerPoint Presentations: Abridged Version
The Stanford University Office of Digital Accessibility provides a step-by-step guide on how to create accessible PowerPoint presentations. This abridged version highlights key points.- accessibility
- PowerPoint
- Stanford University
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Video
The Genie Is Out of the Bottle for Polygenic Screening of Embryos: Where To From Here?
The ELSI Friday Forum was held on Friday, March 10, 2023. A growing number of private companies are offering prospective parents using in-vitro fertilization polygenic screening of embryos to…- Polygenic Screening of Embryos
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Video
ELSIcon2022: Paper Session 11
ELSIcon2022 • Paper Session 11 • June 2, 2022 Includes discussion material from Anya Prince, Jessica L. LeBlanc, Lisa Dive and Ainsley Newson.- Genetic testing and screening
- Live
- Paper