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DuBois and colleagues developed the Attitudes Toward Genomics and Precision Medicine (AGPM), a novel measure which evaluates attitudes toward activities such as genetic testing, collecting…

Küchenhoff and colleagues created the Genetic Technologies Questionnaire (GTQ), a scale to measure ethical judgements about genetic technologies.

Conner and colleagues developed this interview guide to better understand primary care providers’ readiness to conduct population-based risk assessment and offer genetic testing for hereditary cancer…

Goranitis and colleagues developed the genomic utility valuation (GUV) scale to enable a standardized measurement and scoring of genomic utility based on 5 key policy priority indicators: clinical,…

Smith and colleagues developed the GENEtic Utility (GENE-U) scale to assess the perceived utility of genetic screening from the perspective of those who are undergoing risk-based or population-based…

Hayeems and colleagues developed The Clinician-reported Genetic Testing Utility Index (C-GUIDE) to define and quantify the clinical utility of genetic testing. C-GUIDE was designed to capture the…

This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information…

This project evaluated simplified tools used to inform the public around the consent process. The data dictionary for this study outlines the structure, content, and variable definitions for the…

Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and…

Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings…