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Video
Genomic Data Sharing: Putting Principles and Policy into Practice
ELSI Friday Forum • October 8, 2021 Genomic data governance principles were largely developed for data collection and use in research contexts. Boundaries between genome research and clinical…- Data Governance
- data sovereignty
- genomic data sharing policy
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Video
Welcome and Opening Remarks
Welcome and opening remarks to the ELSI Virtual Forum Sandra Lee, PhD Mildred Cho, PhD -
Video
Remembering 9/11: Ethical, Legal and Social Issues with Using DNA for Disaster Victim Identification
ELSI Friday Forum • September 10, 2021 Following the attack on the World Trade Center in New York City on September 11, 2001, investigators engaged in the greatest forensic challenge in the US and…- Disaster victim identification (DVI)
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Video
Current Legal Challenges to Abortion: Implications for Prenatal Genetics
ELSI Friday Forum • July 9, 2021 Multiple US states have passed laws limiting the ability to terminate a pregnancy affected by Down syndrome or other genetic conditions, with the Ohio version of…- Prenatal Counseling
- prenatal genetic testing
- Legal Aspects
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Video
Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease
ELSI Friday Forum • June 11, 2021 Pilar Ossorio, JD, PhD, moderates this session with panelists Liza-Marie Johnson, MD, MPH, MSB, and Melissa Creary, PhD, MPH, describing the…- sickle cell disease
- Gene Therapy / Gene Transfer
- Genetic Intervention
- Gene Transfer
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Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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Video
Widening the Lens: Using Arts in ELSI Research
Using the arts in ELSI research can offer new insights and opportunities to engage with diverse participants in genomic research. ELSI scholars have creatively incorporated…- arts-based methods
- ELSI research
- ART
- Community Engagement
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Video
Migrant DNA: Context, Ethics and Legal Issues
This ELSI Friday Forum considers the ethical, social, and legal implications of the diverse applications of DNA technologies that impact migrants entering or resident in the United States. When…- Immigrants
- DNA testing
- human migration
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Video
A Prospectus on Ethical Issues in the Context of Collaborations Between Academic and Non-academic Institutions on Genetics Research
Emily Bullis, MA and Anjali Shastri, PhD - 23andMe ELSIconversations - February 26, 2021 Genetics research has been far from equitable in terms of engaging representative numbers of participants of…- Direct to Consumer Genetic Testing
- Underrepresented Groups
- Genetic Research
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Video
Genomics and Infectious Disease: Scientific and ELSI Issues of COVID
Genomics is being used in several distinct ways to understand and address the Covid-19 pandemic. Pathogen genomics investigates the genetics of the virus itself and enables identification and…- genomics and infectious disease