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Video
ELSIcon2022 Listening Session: ELSI and the All of Us Research Program
ELSIcon2022 • Networking Session • May 31, 2022 Katherine Blizinsky, Subhashini Chandrasekharan This listening session is intended to engage ELSI researchers and stakeholders to: i)…- Live
- Networking Session
- All of Us Research Program
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Video
Part 3. Assessing Access to Care in the Clinical Sequencing Evidence-Generating Research Consortium: Contexts and Challenges
Sara L. Ackerman, MPH, PhD - University of California San Francisco ELSIconversations - April 16, 2021 The U.S. Department of Health and Human Services broadly defines access to care as: (1) entry…- Ethics of precision medicine
- precision medicine research
- ELSIconversations
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Video
ELSIconversations ELSICon2022: Stakeholder Perspectives on Data Sharing and Privacy
Co-Moderators: Vasiliki N. Rahimzadeh, PhD; Sara Ackerman, PhD, MPH; & Sandra Soo-Jin Lee, PhD Presenters: Karen Meagher, PhD, Alyx Vogle, MS CGC, & LaKisha David,… -
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ELSIcon2022 Paper: Neglected ELSI in Biobanking: Addressing Issues of Governance, Stewardship, and Equity
ELSIcon2022 • Paper • June 3, 2022 Roselle Ponsaran, Kyle B. Brothers, Aaron Goldenberg, Jean Cadigan The promotion of precision medicine has led to increased interest in larger collections…- Live
- Paper
- equity and justice in genetics
- Data and data stewardship
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Video
Patient and family preferences on direct contact by a health system to invite cascade screening
Nora Henrikson, PhD, MPH - Kaiser Permanente and University of Washington ELSIconversations - March 26, 2021 Background. Cascade screening is key to the promise of precision medicine, but…- Cascade screening
- Patient Preferences
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Video
Genomics, Human Behavior, and Social Outcomes
Genomics, Human Behavior, and Social Outcomes • October 12, 2021 This is the first in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by…- ELSI
- Journalism
- Sociogenomics
- Behavioral Genetics
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ELSIcon2022 Flash: Genetic testing for addiction: A qualitative examination of interest, motivations, and concerns among patients with gambling disorder and alcohol use disorder.
ELSIcon2022 • Flash • June 3, 2022 Shawn Sorge, Matthew Lebowitz Rationale: Addictive disorders are increasingly conceptualized as having a genetic basis. Personalized genetic information is…- Live
- Flash
- Uptake of genetic testing
- Genetic testing and screening
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Video
Widening the Lens: Using Arts in ELSI Research
Using the arts in ELSI research can offer new insights and opportunities to engage with diverse participants in genomic research. ELSI scholars have creatively incorporated…- arts-based methods
- ELSI research
- ART
- Community Engagement
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Video
ELSIcon2022 Panel: Towards Justice- Race, ELSI, and Imagined Futures
ELSIcon2022 • Panel Session 17 • June 2, 2022 Melissa Creary, Kadija Ferryman ELSI has had to contend with the ways that the field has and has not adequately attended to race and racism.…- Live
- Panel
- Reflections on the ELSI field
- Gene therapy and gene editing
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Video
Law Enforcement and Genetic Data: A Discussion for Journalists
Law Enforcement and Genetic Data: A Discussion for Journalists • October 26, 2021 This is the second in a series "Genomics in Society: New Developments, New Questions: Discussions with…- Law Enforcement
- Genetic Data Sharing and Management