News

Announcement

Announcing a New Special Issue of the Journal of Literature and Science

We are pleased to announce the publication of a special issue of the Journal of Literature and Science, Fictions of Genetic Privacy, co-edited by Jay Clayton and Claire Sisco King. It features nine…

White background, blue dots, text: "ELSI in Review"

Article

ELSI in Review • July 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2022 set explores regulations for direct-to-consumer…

NIH Announcement

Solicitation of Nominations for the 2022 NHGRI’s Outstanding Award for Enhancing Diversity, Equity, Inclusion, and Accessibility in the Genomics Workforce

View Notice online Notice Number: NOT-HG-22-014, Release Date: June 7, 2022

Article

ELSI in Review • June 2022

About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2022 set explores distributed ledger technology in…

Photo of Akshay Sharma and Liza-Marie Johnson

Spotlight

Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group

Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…