Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related to human disease.

This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care.

McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia. These scenarios could be used to inform the decision-making of data access and research ethics committees by enhancing understanding of the downstream uses of genetic sequence information. Scenarios 1 - 6 are available in Table 3 of the linked publication.

In the linked study, De Vries and colleagues provided participants with a description of a fictional biobank and a description of blanket consent. They measured respondent comprehension of this information using 6 true/false questions and assessed willingness to donate under a blanket consent model. Followng presentation of participants with seven research scenarios that may present moral concerns, they reassessed willingness to donate under blanket consent, "even if" their samples were used for the research described. The authors also presented participants with five consent policies ranging from blanket to study-by-study consent and asked participants to identify whether they foudn these policies acceptable. Please see the Survey Measures section of the linked article for additional details and find the moral concerns scenarios in Table 1 and consent policy in Table 2.

In the linked study, De Vries and colleagues provided participants with a description of a fictional biobank and a description of blanket consent. They measured respondent comprehension of this information using 6 true/false questions and assessed willingness to donate under a blanket consent model. Followng presentation of participants with seven research scenarios that may present moral concerns, they reassessed willingness to donate under blanket consent, "even if" their samples were used for the research described. The authors also presented participants with five consent policies ranging from blanket to study-by-study consent and asked participants to identify whether they foudn these policies acceptable. Please see the Survey Measures section of the linked article for additional details and find the moral concerns scenarios in Table 1 and consent policy in Table 2.

In the original study, Briscoe and colleagues asked participants how each of twelve, randomly ordered policies (e.g., employee code of conduct, right to request deletion of data, warrant protection of government access, etc.) would affect their willingness to provide their genomic data.

These eight consent scenarios that describe consent and data sharing arrangements were used to assess respondents' opinions of the conduct of a precision medicine cohort study on genes and environment. In the original study, respondents were shown one, randomly selected scenario, and were asked if they would “consent to share your samples and information with researchers in this manner”. The scenarios vary by consent structure (broad, study by study, menu, or dynamic consent) and by the presence or absence of a statement indicating that cohort participants would “have access to a website where you would be able to see what studies are going on, which studies are using your information, and what each study has learned.”