Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
41 - 50 of 76 Research Tools
-
Genetic Knowledge Index
Year: 2018Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for
Research Population: AdultsContact: [email protected] -
Support of Science and Technology Scale
Year: 2018Clarke and colleagues created this measure of support of science and technology (SST) for use in a study that assessed willingness to pay for expanded carrier screening.
Research Population: AdultsContact: [email protected] -
Preferences and Expectations for Return of Individual Research Results Survey
Year: 2021Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results.
Research Population: AdultsContact: [email protected] -
Choice Based Conjoint (CBC) Survey, Preferences for Information About Incidential Findings
Year: 2017Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different attrib
Research Population: AdultsContact: [email protected] -
Consent Preferences of UK Research Volunteers for Genetic and Clinical Studies Survey
Year: 2015This survey assesses views on aspects of the consent process, including willingness to share medical information and DNA for different research purposes, including controversial areas of research…
Research Population: AdultsContact: [email protected] -
Police Access to Genetic Genealogy Databases Survey
Year: 2018This 20-item survey by Guerrini and colleagues can be used to assess public opinion on police access to genetic genealogy databases.
Research Population: AdultsContact: [email protected] -
Public Attitudes Toward Genetic Modification in Dairy Cattle, Survey
Year: 2019This survey can be used to collect respondent characteristics, attitudes about the genetic modification (GM) of cattle, the perceived effectiveness of GM modifications, knowledge of GM, and attitud
Research Population: AdultsContact: [email protected] -
Scenarios on Genetic Research, Testing, and Return of Results
Year: 2020Hiratsuka and colleagues developed these six scenarios for use in small group discussions focused on their implications.
Research Population: Alaska Native and American Indian AdultsContact: [email protected] -
Research Scenarios Associated with Moral Concerns
Year: 2016In the linked study, De Vries and colleagues provided participants with a description of a fictional biobank and a description of blanket consent.
Research Population: AdultsContact: [email protected] -
Social Policy Options forBiobank Consent
Year: 2016In the linked study, De Vries and colleagues provided participants with a description of a fictional biobank and a description of blanket consent.
Research Population: AdultsContact: [email protected]