Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
21 - 30 of 55 Research Tools
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Survey Instrument, Attitudes about the Ethics of Research on Medical Practices (RoMP)
Year: 2015The survey begins with questions about attitudes toward research, physicians, and health systems, interspersed with the 3 videos and questions to assess understanding of ROMP concepts.
Research Population: AdultsContact: [email protected] -
CSER Phase 2 Organizational Readiness to Change Assessment
Year: 2018The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing.
Research Population: Adults -
Clinical Broad Data Sharing Consent Brochure, Clinical Genome Resource (ClinGen)
Year: 2017This is a printable version of the information from the Clinical Broad Data Sharing Consent Video (see this database).
Research Population: AdultsContact: [email protected] -
Influences on Precision Medicine Knowledge and Attitudes (Survey)
Year: 2020This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their attit
Research Population: AdultsContact: [email protected] -
Scenarios for Ethical and Legal Analysis of Genomic Data Sharing Practices
Year: 2020McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia.
Research Population: AdultsValidation(s):McWhirter, R., Eckstein, L., Chalmers, D., Critchley, C., Nielsen, J., Otlowski, M., & Nicol, D. (2020). A scenario-based methodology for analyzing the ethical, legal, and social issues in genomic data sharing. Journal of Empirical Research on Human Research Ethics, 15(4), 355-364.
Contact: [email protected] -
Preferences for the Provision of Whole Genome Sequencing Services Among Young Adults
Year: 2017This survey was designed for use with the 10-minute video, Whole Genome Sequencing and You (available in this database).
Research Population: AdultsContact: [email protected] -
Genetic Knowledge Index
Year: 2018Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for
Research Population: AdultsContact: [email protected] -
Support of Science and Technology Scale
Year: 2018Clarke and colleagues created this measure of support of science and technology (SST) for use in a study that assessed willingness to pay for expanded carrier screening.
Research Population: AdultsContact: [email protected] -
Preferences and Expectations for Return of Individual Research Results Survey
Year: 2021Sayeed and colleagues developed this survey for use in the Project Baseline Health Study, which collected a variety of participant data, including genetic test results.
Research Population: AdultsContact: [email protected] -
Choice Based Conjoint (CBC) Survey, Preferences for Information About Incidential Findings
Year: 2017Ploug and Holm developed this choice based conjoint survey to record participant preferences about whole genome and exome sequencing results reporting in three scenarios with seven different attrib
Research Population: AdultsContact: [email protected]