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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

1021 - 1030 of 1099 Additional Resources

  • This article published in PLOS Computational Biology shares ten recommendations to create a compliant and effective Data Management and Sharing Plan.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)

  • The DMPTool is a free, open-source, online application that helps researchers create data management plans.

    • DMPTool
    • data management plan
    • data sharing
    • 2023 NIH Data Management and Sharing Policy

  • This Harvard Library webinar provides a high-level overview of DMPTool and explains how to easily create a Data Management and Sharing Plan that complies with the 2023 NIH Data Management and Sharing policy.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • data management plan
    • Harvard Library
    • webinar
    • DMPTool

  • Use this checklist created by Open Science Framework to verify you have all the required elements for your Data Management and Sharing Plan.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)

  • This guide, prepared by the Council on Governmental Relations (COGR), provides information for institutions to facilitate their implementation of the 2023 NIH Data Management and Sharing Policy.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)
    • Council on Governmental Relations

  • Explore a list of data sharing repositories supported by the NIH.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)
    • data repositories

  • This NIH website explains the possible financial costs of data sharing and how to budget them in an application for funding.

    • 2023 NIH Data Management and Sharing Policy
    • data sharing
    • National Institutes of Health (NIH)
    • budget
    • grant applications
    • funding

  • The QDS project team at Washington University School of Medicine in St. Louis has developed the QDS Toolkit to support researchers in planning for and sharing qualitative data in an ethical manner. The Toolkit includes a planning guide that provides guidance and key considerations for research project planning, data collection and management, and sharing qualitative data. Additionally, there is information on the new Qualitative De-identification Support (QuaDS) Software, which improves the quality and length of time needed to de-identify data.

    • qualitative data
    • data sharing
    • 2023 NIH Data Management and Sharing Policy

  • This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

    • Jennifer K. Wagner
    • NHGRI
    • GINA
    • HIPAA
    • genetic privacy

  • This educational resource offers a summary of some United States (federal) laws and some specific state laws that offer a variety of legal protections related to genetic/omic and mobile/digital health-related information. It was created as part of the "Consumer Protections for Genomics & Precision Health" project funded by NHGRI Grant No. R01HG011051 in September 2022 (except for a few updates made in June 2023 that are noted).

    • Jennifer K. Wagner
    • NHGRI
    • GINA
    • HIPAA
    • genetic privacy