Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.
1121 - 1122 of 1122 Additional Resources
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Wylie Burke was Principal Investigator of the University of Washington Center for Genomics and Health Care Equality. This center's goal was to develop methods to inform all segments of society about technological advances, and to improve the mechanisms for obtaining input from diverse populations to help to identify and assess policy options for addressing these challenges. The center operated from 2004 - 2017.
TAGS:
- CEER
- University of Washington
- medically underserved population
- genetic screening
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Reed Pyeritz was Principal Investigator of the University of Pennsylvania Center for the Integration of Genetic Healthcare Technology (Penn CIGHT). This center was focused on the implications of the communication and use of potentially uncertain genetic information and developed tools to help consumers, professionals, policy makers and insurers understand and cope with the certainty or uncertainty of results from genetic technologies. The center operated from 2007 - 2014.
TAGS:
- CEER
- Variants of uncertain significance
- direct-to-consumer genetic testing