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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

361 - 370 of 1122 Additional Resources

  • Requires parental consent for newborn DNA storage. The bill states that no test, DNA, blood spot, or other genetic information may be retained with an infant's identifying information other than for the purpose of newborn screening without parental consent. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York
    • Newborn screening

  • The bill requires accident and health insurance policies to cover the cost of genetic testing for people with a family history of cancer when the attending physician determines the person has a significant risk of cancer. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York
    • health insurance coverage
    • genetic testing

  • Requires policies that provide coverage for hospital, surgical or medical to cover screening for ovarian cancer, including genetic testing. Additional coverage is required if genetic testing is positive. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York
    • health insurance coverage
    • genetic testing

  • This bill regulates the use of human subjects for medical research and experimentation, including subjects with mental disorders and children. Provisions include that no greater than minimal risk non-therapeutic human research may be conducted on a child without consent of a parent or guardian. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York

  • Requires written notification to parents of infant's whose DNA or blood spots are retained. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York
    • genetic privacy

  • Establishes a genetics advisory council. Topics to be examined by the council include (1) creating an environment in which there is equitable access to the benefits of genetic tests to all citizens regardless of race, ethnicity or economic status; and (2) the use of any genetic test by insurers, employers or educational institutions, including the potential for compromising the individual liberties and civil rights of individuals or causing individuals to suffer unfair discrimination. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York

  • Requires accident and health insurance policies to cover the cost of genetic testing of persons with a family history of cancer. Coverage must include testing and any subsequent treatment based on the results of the test for people with a significant risk of contracting cancer. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York
    • health insurance coverage
    • genetic testing

  • Requires health insurance policies to cover comprehensive genetic screening for breast, ovarian, prostate, colon and lung cancers. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York
    • health insurance coverage

  • Requires health insurance policies to cover comprehensive screening for ovarian cancer. Additional coverage for computed tomography, barium enema X-rays, magnetic resonance imaging (MRI), positron emission tomography, laparoscopy, colonoscopy and biopsy if a person is at increased risk for ovarian cancer due to specified factors, including positive genetic testing. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York
    • health insurance coverage
    • genetic testing

  • Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling. Participation in the program is voluntary, and all information is confidential. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • New York