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Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.

491 - 500 of 1122 Additional Resources

  • This bill requires health insurers to comply with federal acts, including the Genetic Information Nondiscrimination Act of 2008. The insurance commissioner may revoke, suspend or refuse the license of insurers who fail to comply, issue a cease and desist order, or impose penalties. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania
    • health insurance nondiscrimination

  • This bill requires insurers to comply with certain federal acts, including the Genetic Information Nondiscrimination Act. Approved by the Governor, March 22, 2010 Bill Status: Enacted

    • state bill
    • bill
    • bill status enacted
    • Pennsylvania
    • health insurance nondiscrimination

  • This bill creates the Body Data Privacy Act. This bill prevents any government agency from denying benefits or privileges to individuals for the refusal to disclose biometric data, which is defined to include DNA or RNA. Exemptions include disclosure as required by federal statute, state statute or law enforcement. Requests for disclosure must state whether disclosure is voluntary or mandatory and the reason for the request. Individuals whose biometric data is misused may bring an action in the court of common pleas for remedies. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania
    • genetic privacy

  • This bill prohibits small group health insurers from engaging in medical underwriting, including genetic information. Measure failed. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania
    • health insurance nondiscrimination

  • All individual or group health or sickness or accident policies must provide the minimum coverage required for costs associated with a mammogram. Such coverage must include every year for women 40 years of age or older and with any mammogram based on a physician's recommendation for women under 40 years of age. Any mammogram includes ultrasound screening, magnetic resonance imaging or other supplemental screening if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data system established by the American College of Radiology or if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as deemed medically necessary by a physician. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania
    • health insurance coverage
    • genetic testing

  • All individual or group health or sickness or accident policies must provide the minimum coverage required for costs associated with a mammogram. Such coverage must include every year for women 40 years of age or older and with any mammogram based on a physician's recommendation for women under 40 years of age. Any mammogram includes ultrasound screening, magnetic resonance imaging or other supplemental screening if a mammogram demonstrates heterogeneous or dense breast tissue based on the Breast Imaging Reporting and Data system established by the American College of Radiology or if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as deemed medically necessary by a physician. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania
    • health insurance coverage
    • genetic testing

  • All group or individual health or sickness or accident insurance policies must cover costs associated with a mammogram every year if a woman is believed to be at increased risk for breast cancer due to family history or prior personal history of breast cancer, positive genetic testing or other indications as deemed medically necessary by a physician. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania
    • health insurance coverage
    • genetic testing

  • Amends the Breach of Personal Information Notification Act, providing for the notification of residents whose personal information data was or may have been disclosed due to a security system breach. Personal information includes genetic information. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania

  • Provides for the notification of residents whose personal information data was or may have been disclosed due to a security system breach. Personal information includes genetic information. Died. Bill Status: Died

    • state bill
    • bill
    • bill status died
    • Pennsylvania
    • genetic privacy

  • Charmaine Royal is Director of the Center on Genomics, Race, Identity, Difference (GRID) at the Social Science Research Institute, Duke University. GRID brings together collaborators and partners to explore issues at the intersection of genetics and race and other descent-related identities such as ancestry, ethnicity, tribe, and geographic and national classifications.

    • Race
    • identity
    • ancestry
    • Ethnicity
    • tribe
    • geographic
    • classifications