Explore our curated collection of resources including top publication outlets for ELSI scholars, Centers of Excellence in ELSI Research, ELSI databases and research centers, genome research consortia, statutes and legislation related to genomics, and bioethics resources.
Amends the state law pertaining to direct and indirect advertisement of or solicitation of business for medical laboratory tests. Died. Bill Status: Died
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Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/5/2019 Unfavorable Report by House Rules and Executive Nominations; Withdrawn. Bill Status: Died
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The provision in the original version of the bill pertaining to the use of genetic information by carriers was amended. The enacted legislation establishes a workgroup on maintaining the protections established by the Affordable Care Act. May 13, 2019 Approved by the Governor - Chapter 418. Effective June 1, 2019. Bill Status: Enacted
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Amends the definition of personal information used in the state data privacy act. Personally identifiable information is defined to include an individual's DNA. Died. Bill Status: Died
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A hospital or related institution may not discriminate in admitting or providing personal care based on genetic information. Died. Bill Status: Died
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Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. Bill Status: Died
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A person who directly or indirectly advertises or solicits business for diagnostic laboratory tests or procedures is a covered entity under HIPAA and must make certain disclosures. The law does not apply to germline genetic or genomic testing for the analysis, diagnosis or prediction of human disease. May 13, 2019 Approved by the Governor - Chapter 413. Effective October 1, 2019. Bill Status: Enacted
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Requires managers and supervisors in the Legislative and Executive branches of State government to immediately report certain incidents of workplace bullying, including bullying based on genetic information. 3/11/2019 Unfavorable Report by Finance; Withdrawn. Bill Status: Died
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Enacts the Online Consumer Protection Act. Defines biometric information to include an individual's DNA. Died. Bill Status: Died
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A business that owns or licenses computerized data that includes personal information such as genetic information of an individual must conduct a reasonable and prompt investigation upon the breach of the security of a system. April 3, 2019 Unfavorable Report by Finance. Bill Status: Died
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