Governance | ELSIhub

Governance

Science and Technology Studies (STS) for ELSI Research

Read more about Science and Technology Studies (STS) for ELSI Research

The interdisciplinary field of science and technology studies (STS) broadly attends to how scientific and technological knowledge systems, objects, practices, and discourses shape and are shaped by historical, social, cultural, political, and economic values, norms, relations, and institutional structures.

The intrinsic value of public deliberation in the governance of human genome editing

Read more about The intrinsic value of public deliberation in the governance of human genome editing

Getting it right: How public engagement might (and might not) help us determine what is equitable in genomics and precision medicine

Read more about Getting it right: How public engagement might (and might not) help us determine what is equitable in genomics and precision medicine

Kieran O'Doherty

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Research Ethics

public deliberation

Qualitative Research

Anticipatory governance of noninvasive prenatal testing for “non-medical” traits: Lessons from regulation of medically assisted reproduction

Read more about Anticipatory governance of noninvasive prenatal testing for “non-medical” traits: Lessons from regulation of medically assisted reproduction

ELSIcon2022 Paper: A Survey on Public Perception toward the Korean National Bio Big Data Project

Read more about ELSIcon2022 Paper: A Survey on Public Perception toward the Korean National Bio Big Data Project

ELSIcon2022 • Paper • May 27, 2022

Ilhak Lee, Hyun-Young Park, Chai Hee Youl, Jeong Eun Kim, Hannah Kim, Jihyun Yang

A Survey on Public Perception toward the Korean National Bio Big Data Project

Read more about A Survey on Public Perception toward the Korean National Bio Big Data Project

ELSIcon2022 • Pre-recorded Paper

The ethics of neurogenetics research in Africa: Considerations and guidelines

Read more about The ethics of neurogenetics research in Africa: Considerations and guidelines

The Belgian DNA Debate: An online deliberative platform on the ethical, legal, and social issues of genomics

Read more about The Belgian DNA Debate: An online deliberative platform on the ethical, legal, and social issues of genomics

Eric M. Meslin

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Research Ethics

Evidence for policy

Disuruptive technology ethics