Codebook: Pediatricians' Understanding of Children's Health Rights

This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

Codebook: Newborn Screening Residuals

This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

Codebook: Newborn Screening Education

This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

Codebook: Improving Understanding about Pre-Implantation Genetic Screening (PGS) with In Vitro Fertilization

The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro fertilization. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

Codebook: ECS - Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes

REDCap codebook for the project "Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes." The codebook outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

Codebook: CRiTICS - Video Coding

Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

Codebook: Alternate Understandings of Genetic Causation

The aim of this project was to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising from behavior genetics research. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037